Mom's Reaction to the First Smile of her Special Needs Child
- By Kimberly Abernathy
Nonketotic Hyperglycinemia has robbed Sophie of so much. She cannot: walk, sit, stand, roll over, hold toys,talk, smile, or see well. I've accepted all of that, but the day she started hospice my whole world was torn apart.
We had been through two years of fighting for her life, and to me when the word “hospice” was uttered, it meant the end. I was a total mess that morning. I bathed my princess to get her ready for everyone to meet her at hospice. But something happened while I was dressing her; I broke down. I could not stop crying; my child was going to die. How do you handle that?
Full of tears, I looked at Sophie, and she gave me the biggest smile that I had ever seen in my life. My child — who does not smile ever — just smiled at her momma. I instantly knew that everything was going to be alright.
I promised Sophie that she would never go through this NKH journey alone, and that I'd be right there holding her hand the whole way. I truly believe that smile was her way of being there for her momma. She knew I needed that at that exact moment.
Sophie graduated from hospice on Sept 5, 2015, but NKH will take her one day. One thing is for sure though, Sophie and I will always be there for each other.
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Article Edited by : Jose Rodriguez
- Published on November 03, 2015
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